THIS IS IMPORTANT.
Please take a minute to SIGN THIS PETITION against MAXIM, who recently posted an article on their website titled “5 Diseases We Wouldn’t Mind Having”, where they highlight chronic conditions that are “cool” and/or “good to have.”
The articles begins, “Getting sick isn’t all bad. Bird flu and gingivitis are no laughing matter, but there are some ailments that could actually turn into a good thing.”
As a member of the Ehlers-Danlos community, I am absolutely APPALLED about this article. The concept that ANY chronic condition would be good to have is just completely ludicrous. The article misinforms the public about EDS, which is a serious problem. Ehlers patients already have issues with medical professionals refusing to believe this disorder is harmful due to the overall lack of knowledge and many misrepresentations of Ehlers Danlos. I have been suffering from chronic pain from Ehlers Danlos Syndrome for eight years of my life. I am twenty-two years old. I can tell you first handedly that this disorder IS harmful, and YOU should know about it. Because of articles like this, people with Ehlers-Danlos Syndrome are misdiagnosed or not diagnosed at all. They are refused treatment and care. They are told that it’s all in their head, and that the pain they are feeling every step they take is not real.
I am here to tell you that it is very real. We cannot allow the media to falsely portray Ehlers-Danlos Syndrome. This makes the disorder seem benign, and that characterization directly affects the quality of treatment received by EDS patients. Please help us get this article taken off the web, and reblog to help us spread the word.